Fibromyalgia, and CFIDS CFS ME

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Comment by Catherine Louis on November 25, 2009 at 1:01pm

Kathys Comments

Comment by Catherine Louis on November 25, 2009 at 9:01am

Happy Thanksgiving to my wonderful friends. Love and blessings to each and everyone of you and your families. Soft hugs to all.

Comment by Ellen Rogers on November 25, 2009 at 6:05am

I too agree a show on Fibromyalgia would be wonderful. Some people know it exsists in word only. Most don't beleive it is real and don't understand what horrible pain comes with it. My sister thinks I'm just whining. Exposure is the only way to inform people. Most Drs. have no information or knowledge on the desease to even form an opinion. It would have to be their specialty to have even have treated anyone with Fibro. My Brother is one of the leading oncologists in the nation and is smart enough to say he knows nothing about IT.

Comment by Ellen Rogers on November 25, 2009 at 5:57am

Hi. I've been having a hard time with the weather change. The cardiologist raised my dose of Lipitor. Lipitor,I can now confirm increases myalgia. I'm having troubles getting in and out of "MY" chair.Going to the gym and keeping active as we are told only makes things worse. I feel as if I'm being torn down. Does thst mke any sense. I'm so glad that there is a place to talk about this without being judged. There are members of my own family that think I'm being a wimp!

Comment by Cathy Tolman on November 24, 2009 at 2:34pm

How awesome we have so many members, I hope more of them will choose tp post some times.
I think we need to thank Bonnie Hunt for allowing us to have this place to share amongst those who understand our pain & sufferings.
I am hoping that maybe, someone on her staff will read these and maybe she will choose to do a show about FM. Too mnay people are so so Unaware of this awful disease and how many people it affects.

Thank you Bonnie... Have a safe, Happy thanksgiving every one.

Comment by Clarissa Shepherd on November 24, 2009 at 1:52pm

GROUP , WE HAVE REACHED A MILESTONE OF MEMBERS. WE HAVE PAST 50 AND NOW HAVE 52. I AM SO HAPPY TO SEE THE GROUP GROWING, TO READ YOUR COMMENTS AND ENJOY HAVING YOU SHARE YOUR OWN EXPERIENCES. I WANT TO WISH EACH OF YOU A WONDEFUL AND PEACEFUL THANKSGIVING.

Comment by Clarissa Shepherd on November 24, 2009 at 1:47pm

Hello , some of you have asked what CFIDS is, as I have it and Fibromyalgia. CFIDS is caused by a virus which can breach the blood brain barrier. It causes stomach problems, memory loss, brain fog, muscle pain and weakness, sensitivity to odors, light, noise, heat and cold, migraines, heart palpitations, blurred vision and exhaustion beyond words. This is to name a few of its symptoms. Many of its symptoms overlap with the symptoms of Fibromyalgia. CFIDS usually causes its victims to be bedridden and many in a wheelchair. This is the place that I came from so that is why I believe the things that I've learned can help others. If any of you would like to share your stories with us. It isn't complaining, its letting us all get to know each other.

Comment by Lace Strother on November 23, 2009 at 12:35pm

Hi ... just joined ... thought it would be nice to share thoughts/life's journey with other Fibro'ers

Have a Very Blessed Day
Lace

Comment by Catherine Louis on November 23, 2009 at 10:47am

just dropping in to say hello to everyone. it has been hard with family from out of town and granny's memorial service and getting ready for the holidays. I still have a quilt to make and then i am almost done. love and blessings to all of you. gental hugs,,

Comment by Clarissa Shepherd on November 21, 2009 at 7:44pm

Katrinam, Cathy, Janine, You guys are just too funny. I will have to admit that I must laugh at my infirmities in order not to get myself down. Sometimes when I say a word incorrectly or forget it altogether, I just blame it on my brain fog. I guess maybe, if the truth be told , I could blame more on this brain stuff couldn't I ? Do you supose that would work ? Just say what we want and say oops, brain overload. Oh, The holidays. I get too anxious, thinking will I be able to do this or that. I have done what Janine says, if I see something all through the year that I think someone would like, I get it and put it away.
Msospreywoman, I do like to just recline and watch a good movie. It seems to relax me. I too, like to find something which makes me laugh.
Wanda, so glad you liked the quote. I find it so approprate for us.
Well, each of you get some rest. I've so enjoyed reading your comments tonight and every night. Best to you my fellow travelers for fellow travelers are who we are.

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