Fibromyalgia

[Joann Randich]

Hi anyone, I have Fibromyalgia and now taking Lyrica, I have had some relief but I still have alot of pain some days. Does anyone take Lyrica and could tell me thier situation?
This is new to me and have only known about it for 8 months. I just thought it was bad arthritis, it scares me that I could get worse. Thanks, Joann Randich

[Doreen Zmijski]

Hello everyone. Let me tell you about cymbalta. I was on it and was sweating so bad Iwould have to change my clothes 4-5 times a day. My hair looked like I came out of the shower. My sheets were wet and had to be changed daily. I had everything checked and everything was in Balance.Then I met Dr. Clauw from Uof M who is devoting his life to the study of fibro. Well needless to say I was standing there looking like a drenched rat, (LOL) when I asked him about sweating he asked if I was on cymbalta. When I said yes, he told me to wean myself off and the terrible sweating stopped.

I did go back on a very small dose of Lyrica 75 mg 2xdaily. It has helped with the severe sciatic pain. Did not take it away, but it is a little more bearable. Does anyone have pain from clothing???? What I mean is, it hurts to even have undies on. I have tried every kind and it all hurts this started after the sciatic pain. They say it is from the fibro???? I looked it up and yes it can be.

Also does anyone know what kind of foods can effect fibro? I have heard of sugars and coke. I have had fibro for 14 years and the symptoms keep changing. I am very careful with meds, but this sciatic pain is terrible, then muscle cramps in the bottom that hurt like bad charlie horses. I just got a tens unit today and will start physical therapy AGAIN. the good thing is they do massage too. hopefully they will be able to stretch this knot out.

I have tried stretching. tennis balls, hot baths, ice, heat biofreeze. The bottom just cramps so bad it brings me to my knees then I have to sit on ice or heat. I have lost over 60 lbs since August. Cant eat when you can't walk to the fridge (LOL). Hope everyone is having a great day.

Doreen

[sheralldo]

BOYHOWDY DO MY CLOTHS BOTHER IT AND IM ONE THAT DOESNT LIKE MY SKIN HANGIN OUT FOR THE WHOLE WORLD TO (GOK ) AT...
IF'N YOU CATCH MY DRIFT,,, IF I CAN KEEP THE SEAMS OF MY CLOTHS OFF ME ITS A BIT EASIER.

[bobbie sanford]

Joann, I have the same thing and have had for about 12 years, there really is not alot that can be done, some meds work and some don't. I have tried Lyrica but no help at all. It probably will get worse but I think that just goes with the disease. I use, pain pills, have just started cymbalta that seem to help a bit and muscle relaxers. Bobbie Sanford

[sheralldo]

Wow tell me about it I have that too. It seems to me that mine seems to be related to weather! When it is cold and wet i can hardly move . Its the heat that helps me best....with sponilosis it makes it a smig harder to handle. However I do my darndest to get out and smell the rose's , Even when they aren't in fulll blooom....
sleep tight eveyone a GOD BLESS US ONE N ALL

[Ellen Stinson]

Hi Joann,
I was told first I had lupus but I had fibro this was in 1992. Lyrica did not help me at all. I do take cymbalta my doctor said you need to take 60 mg to get the best results. It does help I only take 30 mg. I took 60mg for awhile I got dry mouth and thought it was causing it but now I know it wasn't. I do take trazadone at night to help sleep also I take a small dose of ambein. My doctor said it was so important to get rest if you dont sleep you hurt. I wish I didn't have to take any meds.I stay away from pain meds.
Good luck to you
Ellen

[Bobby C Sellers Jr]

I have this desease and it really is a hard one to medicate. The lyrica drug is one I cannot use due to other health issues so I cannot give you any advice on it's use however please note that my prayer is with you. I have suffered for the last 16yrs with it and I am alway's sorry to hear of new cases. God bless you my friend and take care for now.

[cheryl]

Hi I have Fibromyalgia to..I have not tried lyrica... but would also like to know how it is working for you .. I am thinking of trying it ,but am leary. Cheryl

[Tonya]

Hi,
I have been waiting for four weeks for my Lyrica 75mg 2 times a day to come from the company ... they said 4 to 6 weeks, then my doctor has me to also start the Cymbalta when that comes in ... another 2-4 weeks... it hurts some days so much,... I am so hoping that there is relief from these meds...

I am so sorry that you to have Fibro, it has such a nasty little things that come with...

I have the sciatica too... and oh so understand about how painful it is to wear clothes.. just the weight somedays! my left knee is the worst and I have to use a cane because the pain is so bad most of the time when I put weight on it... but when the pain is going down behind my thighs... it hurts so much to use the commode... the cold on the back of my thighs makes me want to scream! does anyone else have this problem? and how do you deal?

[karen vandevender]

i have had fibromyalgia since the 1970's, before they ever knew what it was. I have not tried lyrica, but i have a couple of friends that take it and have had very little relief with it. i am so very, very tired that i can hardly get one foot in front of the other. i have always been very active because my husband and i have 2 sons, 2 daughters-in-law, 4 grandchildren. and we cared for both of my parents and a sister until their deaths and we still have a mentally and physically handicapped 85 year old sister that we have had full care of for 25 years. i was working 3 jobs when social security disabled me in 2002. stress causes the pain to be worse and the pain causes me to get very little sleep at night, which causes the stress and pain to be almost unbearable, but no matter how bad i hurt or feel, i have to get up to care for my sister, which keeps me moving and not giving up. after we go to bed, i am hurting so bad that i have my husband pound me so i can get some relief. don't let the fibromyalgia get you down or keep you in bed. that is the worst thing you can do. stay active even though you don't feel like it

[CHERYL C]

hi joanne,i have been diagnosed with fibro for many years.although it is not a life threatening disease,it is a blessing or a curse knowing that it will never ever get any better or worse than what you feel in a full blown flare up.i use to rake lyrica 3 tmes a day @ 75 mg.s at each time;however,my pcp suggested that i try 100 mgs. 3 times a day during a flare up .some days i feel that i have to force myself to get up and literally have to pry my arms open due to the stiffness in my joints.i know i will never get over the constant ache and pain ,i just have to learn how to deal with it in a decisive manner.
i have learned how to cope with the sleeplessness and the ibs.i do not think i will ever get over the muscle spasms and the soreness.my worst time of year is from late fall to late spring.as far as lyrica goes,it makes me very tired,so tired that i can actually fall asleep .good luck to you.cheryl c from rhode island

[Marlene Cook]

I agree with Lola Greengush. If you have access to a hot tub, it is a blessing. Also, for the pain, you might see if your Doctor will prescribe a muscle relaxer. For me ,what a relief..... plus stretches {that a physical therapist gives you}. And one more thing , if you are not getting a GOOD nights sleep, talk with your doctor. Because your body needs rest to repair itself. Watch out for Depression. I wish the best for you and your family.

[Jerri dawson]

I take Lyrica , Gabapenton, and sometimes a anti-spasm medication for pain. how long have you been on your meds? there are days nothing touches the pain--other days i can forget about it. if after 3 months it don't level out go to the Doc and ask for a change. You may need an increase.